On line registration is now closed.

You can still register for the Run For Rett on Saturday morning beginning at 7:15 AM.

You may still donate by clicking the donation button on this site.

Thank you!

RUN FOR RETT

Saturday, April 22, 2023

IN PERSON EVENT

&

VIRTUAL EVENT

Busse Woods - Grove 28

Elk Grove, IL

5K: 8:30 AM (on site registration begins at 7:00 am)

1 Mile Fun Run - 9:00 am

First 200 participants will receive an official Run for Rett T-Shirt!

The Cause

International Rett Syndrome Foundation purpose is to support and encourage medical research to determine the cause, treatment and cure for Rett syndrome, and to provide informational and emotional support to families of those with Rett Syndrome.

About Rett Syndrome

Rett syndrome is a rare non-inherited genetic neurological disorder that affects 1 in 10,000 females (and even more rarely in males) and begins to display itself in missed milestones or regression at 6-18 months. Rett syndrome leads to severe impairments, affecting nearly every aspect of life: ability to speak, walk, eat and breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements while awake. Cognitive assessment in children with Rett syndrome is complicated, but we know that they understand far more than they can communicate to us, evidenced by their bright and attentive eyes, and their ability to express a wide spectrum of moods and emotions.

Our Mission

For 20 years, we have relentlessly pursued advanced and comprehensive research to transform the lives of all those affected by Rett syndrome. We are focused on delivering treatments and ultimately a cure for Rett syndrome while empowering families with the resources, connections and encouragement they need to thrive.