Run for ALD, Cure the Boys
Sub-events Details
1 Mile Walk
Virtual 1 mile
5K Run
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Virtual 5K
6th Annual
Run for ALD, Cure the Boys!
Nov. 19th, 2022
Knockout ALD is proud to present our 6th Annual Run for ALD, Cure the Boys, a 5K/1 mile run/walk homegrown event, (with a virtual option!) the only one of its kind in the St. Louis area that raises awareness and funds for adrenoleukodystrophy (ALD). ALD is a very progressive rare disease that affects about 1 in 17,000 boys, many of whom suffer severe neurological symptoms that often result in death if undiagnosed and not treated very early. Our event is inspired by the vision of our son Nicholas who had a successful bone marrow transplant (the only current treatment) to halt the progression of his cerebral ALD at the University of Minnesota Children's Hospital (a world leader in transplants and ALD research). In order to initiate and continue life-saving research, the University of Minnesota Leukodystrophy Center depends on charitable donations. 100% of the funds raised from the 6th Annual Run for ALD will directly benefit the University of Minnesota's Leukodystrophy Center for ALD Research to support their research efforts for early identification, more effective therapy and treatment options, and hopefully one day a cure for this devastating disease.
Please join us…you have the option to register for our in-person 5K run/one mile walk in Creve Coeur Park, virtual run or walk, and/or make a donation (see donate tab)! You must register in order to receive a t-shirt. New this year: women's fit size options! Registration deadline for receiving a t-shirt is Oct. 18th. Form a team (or join a team) or donate to our nonprofit Knockout ALD for this very special cause to help Cure the Boys!
Donations may also be made by check (avoids online fees) and mailed directly to Knockout ALD, 1551 Timberlake Manor Parkway, Chesterfield, MO 63017. Thank you!