For a Community. For a Cause. For a Cure. 

Run for a-RARE-ness and Wiffle for a Cure

 

Join us on Saturday, May 2nd, 2026, for the 6th Annual Run for A-Rare-Ness and Wiffle for a CURE! It’s a day packed with fun and purpose, featuring food trucks, bounce houses, face painting, yoga, vendors, and so much MORE!

We are on a mission to find a CURE for MPS1-Hurler Syndrome—a RARE genetic disorder that shortens life expectancy and causes children to suffer from enlarged organs, obstructive airways, heart disease, lifelong pain, skeletal deformities, and more.

We need YOU! All proceeds benefit The Kennedy Ladd Foundation, Inc., a 501(c)3 nonprofit dedicated to providing hope and support to families battling MPS1. Our initiatives include:

• Providing an iPad, gift card, screen protector, and case to MPS1 patients 
• Funding groundbreaking research to find a cure and improve treatment options for MPS1
• Creating hope, community, voices, and a movement to eradicate MPS1

Every Penny Counts
Pennies turn into dollars, and every contribution—big or small—helps us move closer to a cure. If you can’t give financially, we believe in the power of prayer and the impact of sharing our mission.

 

Can’t attend in person? Sign up as a virtual/ghost runner and we’ll mail you a commemorative shirt.

 

Every Prayer. Every Share. Every Penny. COUNTS!
Together, let’s make a difference for Kennedy, Lincoln, and all children battling MPS1. 

Thank you for your support and for helping us bring hope to families in need.

 

The Kennedy Ladd Foundation
PO Box 932
Kingston, TN 37763
www.kennedyladd.org